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I need to start getting a list of Gulf War veterans with Parkinson's disease. I do not need specific details about you (at least right now). I just need to know if there are others out there. I know there is, and this board only represents a very small sample of PGW veterans, but we need to start somewhere.
If you know of ANY PGW veterans with Parkinson's, please list them or have them sign on........ALL PGW veterans, this includes allied veterans. I am writing something up for the November 15th testimony so this info will help. We need to get this added to the Presumptive Service-Connection.
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Date: Mon, 28 Nov 2005 22:36:20 +0000 From: Carl Musgrove <carlmusgrove@hotmail.com>
Subject: Update Dear All,
Just to let you know whats happening.
I have tried to contact David Beresford, the Guardian and Observer Journalist who covered the 1991 Gulf War and has pd. I haven't heard from him yet but have spoken to the defence correspondent of the Guardian who is trying to get hold of him.
I went to a conference on pd research a couple of weeks ago. The chemical mptp was discussed; as I am sure you know it quickly and irreversibly induces parkinsonism which resembles idiopathic pd. It is a pyridine. Pyridine has one CH group in the six-membered ring replaced by a nitrogen atom. Pyridostigmine bromide is a pyridine but sarin is not. Paraquat is a pyridine, and pyridines also appear in aviation fuels. It probably exists in propellants as well.
I emailed Dr Haley and he replied as follows:- " Carl, interesting observation, but I don't think there is enough resemblance between MTPT and PB to expect similar properties. You might ask that question to Beatrice Golomb, who wrote the PB monograph. RH" My biochemist colleague disagrees.
I spoke to Beatrice Golomb at the University of California last week. She told me that she had not considered mptp before but would now have a look at it. Interestingly, the Director of Research at the UK PD Society had a meeting last week looking at the role of ions in causing pd. He is also looking at the association between military service, 91 gulf War and pd.
I also emailed Professor Lee at the UK Assessment Programme who unsurprisingly has yet to reply.
I had a letter from Lord Lloyd today who told me the UK Government might be begrudgingly about to accept the existence of Gulf War Syndrome.
I need facts. Sufferers, year of birth, year dx, year of first symptom, first symptom, service history etc.
Cheers Carl
-------------------- HONOR OUR VETERANS WITH BETTER CARE AND BENEFITS Posts: 3482 | Registered: Jul 2005
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Lord Morris of Manchester, champion of gulf war vets, has written to the UK Minister with reference to my recent testimony and pyridines.
Posts: 93 | From: Wiltshire UK | Registered: Aug 2005
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Not to mix apples and oranges but what about MS? I know my neighbor has MS and is a GW vet and worked extensively on the flight line and with many hydrolic systems? Perhaps the aviation fuel component you speak of has influence in this area as well, and there an increasing number of MS victims who were around these fuels.
Just a thought.
Posts: 36 | From: Omaha NE | Registered: Nov 2005
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quote:Originally posted by Scotty: Not to mix apples and oranges but what about MS? I know my neighbor has MS and is a GW vet and worked extensively on the flight line and with many hydrolic systems? Perhaps the aviation fuel component you speak of has influence in this area as well, and there an increasing number of MS victims who were around these fuels.
Just a thought.
I agree, there's an increasing number of PGW vets with MS as well. Vets with MS have already started a group to get names. While these are "separate" groups, in the end we will pool everyone into a group most likey something to do with Central Nervous System disorders due to service in the Gulf. Chronic Progressive Neuro disorders.....
Posts: 521 | From: FL | Registered: Jul 2005
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I was diagnosed with Parkinsons April, 2005. I flew A-6s from Ranger (45 DS missions, a dozen or so after) through oil clouds and occasionally low (150 feet to 6000 feet) and potentially through clouds of "other" contamination. I'd like to be put on your list.
Thanks,
Pete
Posts: 1 | From: Washington State | Registered: Feb 2006
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quote:Originally posted by whidbeypete: I was diagnosed with Parkinsons April, 2005. I flew A-6s from Ranger (45 DS missions, a dozen or so after) through oil clouds and occasionally low (150 feet to 6000 feet) and potentially through clouds of "other" contamination. I'd like to be put on your list.
Thanks,
Pete
Pete, thank you for posting. What airbases were you stationed at? Even if you were only at them for a day or so? Basically, bases you stepped foot on the ground. Can you recall the earliest symptom? Even vague symptoms that in retrospect may have been a sign or symptom? Your age? Where you from? What treatments/meds are you on now? Have you served in any other conflict or military action? Do you use the VA system? Did you get the anthrax shots and take NAPs pills (anti-nerve agent pills?)Please give as much info as possible. If you want to e-mail this private info, please do......warveteran91@hotmail.com
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Just a FYI...VA has 6 medical facilities around the US researching PD, making them the largest researchers on this disease. Ironically, only approximately 26,000 have the disease. That's really an insignifically minute number to have that many researchers working on it. One of the hour long tv shows did a blurp on the research last year. I can't help but to believe our use of PB pills were something more than for use against sarin. Using vets gives those researching a large focus group. I'd bet a month's worth of my compensation check on it.
-------------------- FIRST IN SUPPORT! Rita (VetDame) Hawkins 100% Disabled Gulf War Veteran (1990-91) Posts: 4 | From: Florida | Registered: Feb 2006
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The minutes of meetings of the US Parkinson's Disease Coordinating Committee reveal the extent of military research into Parkinson’s disease. In 2002, the minutes stated the following. “The Department of Defense (DOD) recently sponsored a New York Academy of Sciences conference on "Parkinson's Disease: The Life Cycle of the Dopamine Neuron". DOD also has funded several projects involving neuroprotection and muscarinic receptors.” In 2004, it was mentioned that the DOD is currently funding 136 projects related to PD. The six VA PD Centers established as the surgical centers for the DBS were mentioned again in 2006.
UK RESEARCH 1. A team from University College London and the University of Newcastle upon Tyne have been chosen to lead a £20 million initiative to speed up the development of new medical treatments for dementia and neurodegenerative disease the Department of Health announced today. The team will co-ordinate a network of NHS staff and resources across the country to expand the number and range of clinical trials of medical treatments for neurodegenerative diseases such as Motor Neurone Disease, Parkinson’s Disease, Huntingdon’s Disease and Alzheimer’s. This is the latest development in the Government’s drive to help the advancement of new medical treatments in six specific disease areas – stroke, diabetes, medicines for children, mental health, cancer, and dementias and neurodegenerative diseases. Each network co-ordinates NHS resources and, working in partnership with clinical researchers, primary care trusts, the pharmaceutical industry and the voluntary sector, enables more patients to take part in clinical trials.
2. Stem cell The Government is making a sustained investment in stem cell research and is committed to ensuring a stable regulatory climate. Stem cell research offers the potential to deliver new treatments for many diseases for which there are currently no effective cures including chronic heart disease and Parkinson’s. UK Stem Cell Initiative The Government welcomes the recommendations in the UK Stem Cell Initiative (UKSCI) conducted by Sir John Pattison. The Government has announced that £100m will be made available for UK stem cell research over the next two years to help develop treatments for devastating illnesses and medical conditions for which there is currently no cure.
Posts: 93 | From: Wiltshire UK | Registered: Aug 2005
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